Monday, April 26, 2010

note from Stacy (transferred from FaceBook)

Calling all survivors! I was told by the doctor it would be good to form a aupport group or join a support group with others that are living with Astrocytoma so for the last couple months I have tried to contact people and they are either unreachable or have passed away! The families of people with brain cancer have been wonderful to me but it seems like a cruel joke!
I also am missing someone I went to radiation with she passed away last week- the world will be a little dimmer without this beautiful person in it!
MD Anderson called this morning and they have received upwards of 500+ pages of medical records! They are ordering the brain tissue sample, I have an MRI on May 6th and they want an appointment with me shortly after! They are so positive and really have made me feel at ease like everything will be okay!
Update after medication stopped: I do feel better since stopping the medication but this weekend I did have a set back.....I have morning sickness I am not pregnant apparently this is normal with my diagnosis...
Also I had an extremely scarry headache yesterday which rendered me helpless! But today is a new day and I am enjoying the subsiding of pain! Thanks for letting me ramble.....I am trying to chronicle this for others who may be going through this!

Friday, April 23, 2010

Update for friends

Update for my Family & dearest friends! Yes I still have Astrocytoma Glioma and will for the rest of my life but my last test showed it was not growing fast and the radiation and surgery resected most of it! Radiation was a one time shot as it was on my brain. As of conference I was still very sick and as I lay in bed Heavenly Father gave me the choice to live or continue as I was......I chose to fight!

As this was such a miracle for me I have kept it to myself.....I have quit taking all medications, started a mostly natural diet and am taking vitamins and drinking 2 gallons of water per day! No pop! Heavenly Father never said it would be easy rings in my ears daily!

I have a doctors appt May 6th.....this includes an MRI with and without contrast and an appt with the oncologist to follow to find out results......with one breath my life could change again ......the anticipation is horrable! The love for my kids is what keeps me going!

I can only send you my love and thank you for your prayers and support as this carries me through! I will never be able to thank all of you for your many selfless acts on my and my families behalf! Thank you infinity! I love you all very much and pray for you also!